Kris Zudich is showing signs of progress, including sitting on his own for about four minutes, his parents report from Los Angeles, where their son is under medical supervision after receiving a one-time genetic treatment earlier in November.
Kris is a little boy with a genetic disease called Spinal Muscular Atrophy Type 1, which affects children at an early age and has an extremely grim prognosis. A drug has recently been developed that has not yet been approved in the European Union which changes the genetic composition of the cells, hence removing the problem at its source. The drug under its trademark Zolgensma is currently available at EUR 2.3 million, which makes it the world’s most expensive single treatment drug. The money for Kris’ treatment has been raised in one of Slovenia’s most successful campaigns of this kind.
Kris in October 3, 2019 Photo: Go Help Kris, Facebook